Support Groups

FIND A SUPPORT GROUP

The National Capital Lyme and Tick-Borne Disease Association is concerned with the physical, emotional and social impact on people and their families diagnosed with Lyme and tick-borne diseases. A network of NatCapLyme chapters in the District of Columbia, Virginia and Maryland offers meetings, events and education. Support groups vary in their focus with emphasis on support, education and social gatherings. If you are seeking a support group check our listings to the left.

Maryland CHAPTERS

The National Capital Lyme and Tick-Borne Disease Association is concerned with the physical, emotional and social impact on people and their families diagnosed with Lyme and tick-borne diseases. A network of NatCapLyme chapters in the District of Columbia, Virginia and Maryland offers meetings, events and education. Support groups vary in their focus with emphasis on support, education and social gatherings. If you are seeking a support group check our listings to the left.

Anne Arundel County Chapter

The Anne Arundel Chapter serves the entire county, including Glen Burnie, Odenton, Severn, Annapolis, Owings, Harwood, Shadyside, Davidsonville, Crofton, Linthicum, Pasadena, Lake Shore, Gibson Island, Deale, Ft. Meade, and Severna Park.

Monthly support group meetings take place the third Saturday of the month.

Location: Anne Arundel Medical Center
Belcher Pavilion, 7th floor classroom
2000 Medical Parkway
Annapolis, MD 21401-3742

Time: 2:00 p.m. to 4:00 p.m.

View upcoming Chapter Meetings.

The meeting facilitator is Rob Cloutier.

Rob Cloutier has been active in Lyme advocacy since 2000, and he has seven years of experience facilitating Lyme disease support group meetings, with four years in Frederick County, and prior to that, three years in Howard County, Maryland. He is more than willing to answer questions regarding Lyme and tick-borne diseases, and he can be reached at frederickcountylyme@gmail.com.

Harford County Chapter

Location: Upper Chesapeake Medical Center
Chesapeake 1 Conference Room
500 Upper Chesapeake Drive
Bel Air, MD 21014

Time: For the date and time of the next meeting, please email harfordlymeadvocates@gmail.com.

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The meeting is facilitated by Janet Jensen.

Janet holds degrees in nursing, computer science, and mathematics and has completed graduate level work in chemistry. She was employed for 10 years as a registered nurse with special interest in medical-surgical nursing and 5 years in immunology research. She is currently working as a researcher on sensor technologies and nano-fabrication methods. Janet’s family has been dealing with Lyme disease and co-infections since 2009. She feels education and sharing “lessons learned” are critical tools in recovering from persistent Lyme disease and co-infections.

For questions and the date and location of the next meeting, please contact Janet at harfordlymeadvocates@gmail.com.

North Carolina CHAPTERS

The National Capital Lyme and Tick-Borne Disease Association is concerned with the physical, emotional and social impact on people and their families diagnosed with Lyme and tick-borne diseases. A network of NatCapLyme chapters in the District of Columbia, Virginia and Maryland offers meetings, events and education. Support groups vary in their focus with emphasis on support, education and social gatherings. If you are seeking a support group check our listings to the left.

Central North Carolina Chapter

Monthly support group meetings are held on the second Saturday of the month.

Location: Queens Grant High School (easily accessible from I-485)
10323 Idlewild Road
Matthews, NC 28105-1910

Time: 1:00 p.m. to 4:00 p.m.

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The meeting facilitators are John and Barbara McLean.

John was misdiagnosed for nine years while he was actually suffering from Lyme disease. Barbara has been a caregiver for her grandmother and mother in-law, both of whom suffered terminal illnesses. She was also John’s advocate during his battle with and treatment of Lyme. The McLean family vowed to raise Lyme awareness in their state.

John can be reached at charlottelyme@gmail.com.

Virginia CHAPTERS

The National Capital Lyme and Tick-Borne Disease Association is concerned with the physical, emotional and social impact on people and their families diagnosed with Lyme and tick-borne diseases. A network of NatCapLyme chapters in the District of Columbia, Virginia and Maryland offers meetings, events and education. Support groups vary in their focus with emphasis on support, education and social gatherings. If you are seeking a support group check our listings to the left.

Blue Ridge Chapter

The Blue Ridge Chapter offers a patient/caregiver support and education group to Frederick, Clarke, Warren, Northwest Fauquier, and Southwest Loudoun counties.

Support group meetings are temporarily cancelled until further notice. However, the nearest support group meeting is the Fauquier County Chapter which is listed below.

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Central Virginia Chapter

The group is facilitated by Joe LeBlanc, who has a long history of educating the public on Lyme and tick-borne diseases.

Joe has been researching Lyme disease since late 1994, when his wife Betty first became ill. He has been on local radio, featured in newspaper articles, and has spoken on tick-borne diseases at local health events in central Virginia.

For questions regarding the location and time of meetings, please contact Joe at joebrcc@gmail.com, or (434) 277-8346.

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Fairfax Chapter

Monthly support group meetings are held on the third Wednesday of the month at alternating locations. Please call facilitator for location.

Locations: Fairfax City Regional Library
10360 North Street
Fairfax, VA 22030-2514

Oakton Public Library
10304 Lynnhaven Place
Oakton, VA 22124

Time: 1:00 p.m. to 3:00 p.m.

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The meeting facilitator is Kathy Boileau.

Kathy has been on the NatCapLyme board of directors since 2001 and has shared her expertise in Lyme disease treatment and diagnosis at many support group meetings. Kathy worked as a registered nurse at Inova Fairfax Hospital for more than 15 years before being diagnosed with Lyme disease in 1998. Always available to talk and help others, Kathy can be reached by phone at (703) 464-0677, or by email at KMBoileau@verizon.net.

Fauquier County Chapter

Monthly support group meetings are held on the third Thursday of the month at alternating locations. Please call facilitator for location.

Location: Warrenton Church of Christ
6398 Lee Highway Access Road
Warrenton, VA 20187

Time: 7:00 p.m. to 9:00 p.m.

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The meeting facilitators are Betsy Ussery and George Phillips.

George is a retired engineer who was diagnosed with Lyme in 2003. He was successfully treated and continues to be symptom-free. Betsy, who has chronic Lyme, is happy to have most of her health restored. She spends much of her time helping Lyme patients understand the complexities of their illness and encourages them to seek treatment. She is an active advocate for tick-borne disease education, as well as testing and treatment options.

You can reach Betsy at 540-341-8245 and George at 540-347-7265. George’s email is phillipsgeo@comcast.net.

Hampton Roads Chapter

Monthly support group meetings are held on the second Tuesday of the month.

Location: New Life Providence Church
1244 Thompkins Lane
Virginia Beach, VA 23464-5228

Time: 6:30 pm to 8:30 pm

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The meeting facilitator is Myra Holt.

Myra Holt has worked in the medical field for over 30 years. She loves working for doctors and helping in the field of clinical nursing. She was diagnosed with Lyme disease and babesia. She encourages patients to attend support group meetings as part of their journey to find wellness. Along the way, she discovered that giving others hope helps in her own recovery.

For more information and questions, you may contact Myra at mlholt13@gmail.com.

Lexington Chapter

Monthly support group meetings are held on the third Saturday of the month.

Location: Hillel House
117 W. Washington Street
Lexington, VA 24450

Time: 10:00 a.m. to noon

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The meeting is co-facilitated by Ellen Douty and Adrienne Hall-Bodie.

Ellen’s background in teaching, marketing, and business serve her well for leading and supporting Lyme patients and caregivers. Having had Lyme for more than 15 years, she is passionate about Lyme support. Ellen can be contacted at ellen.douty@gmail.com

Adrienne Hall-Bodie, a former teacher, retired after 20 years as an administrative assistant at Washington and Lee University. She is an avid hiker and horseback rider, who recently discovered she has had Lyme for several years. Adrienne can be contacted at bodie@rockbridge.net.

Loudoun County Chapter

Monthly support group meetings are held on the fourth Sunday of the month.

Location: DryHome Roofing & Siding
45921 Maries Rd
Sterling, VA 20166

Time: 12:00 p.m. to 2:00 p.m.

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The meeting facilitator is Jaclyn O’Brien.

Jaclyn became an advocate for Lyme disease awareness after being misdiagnosed for a year and recognizing that many others are in a similar situation suffering from the disease. Jaclyn strives to offer support and to help those suffering, as well as to help their loved ones understand Lyme and other tick-borne diseases. She actively seeks to create awareness, educate, and encourage others to become their own advocate.

Jaclyn always welcomes the opportunity to talk with others about Lyme disease. She can be reached at jaclyn@keylyme.org or (908) 672-5652. Alternatively, you can check out the chapter’s Meet-up site at https://www.meetup.com/Loudoun-LymeAdovcates, which will allow you to RSVP for the meetings and then receive email reminders.

 

 

Richmond Area Chapter

Monthly support group meetings are held on the fourth Saturday of the month.

Location: Due to county library policies, the Richmond Chapter has both a primary and alternate meeting place. Please contact Dawn at lymehelpva@gmail.com, or by phone at (804) 322-1865 for more information or to be placed on a meeting reminder email list.

Time: 3:00 p.m. to 5:00 p.m.

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The meeting facilitator is Dawn Wilson.

Dawn is a former cellular biologist, and has held ecological planning and research positions with state agencies and universities. Her years of personal experience with Lyme and tick-borne diseases motivate her to encourage and support others through what can otherwise be an isolating and often misunderstood experience. Her goal is to build a network of people helping people. She is hopeful that greater awareness and outreach will bring about significant changes in current tick-borne disease doctrines and perceptions.

Shenandoah Valley Chapter

Monthly support group meetings are held on the third Saturday of the month.

Location: The Rockbridge Community Church of the Nazarene
2155 Sycamore Avenue
Buena Vista, VA 24416

Time: 1:00 p.m. to 3:00 p.m.

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The meeting facilitator is Diane Wilcox, an Associate Professor in the College of Education at James Madison University. Diane contracted Lyme disease in California in 1989, but was seen by a series of doctors unfamiliar with tick-borne disease. Nearly a year after the initial bite, she was finally correctly diagnosed and treated by a doctor who understood the nature of Lyme. She later was able to earn her Master’s and Doctoral degrees in Educational Psychology at the University of North Carolina.

Diane has worked in the field of educational technology for many years, co-developing educational software applications. She has been teaching at JMU since 2004 and has been active in Lyme disease education since the mid-1990s. You can reach Diane by email at drdianewilcox@gmail.com.

Southwest Virginia Chapter

The contact for this region of Virginia is Mauricia Shanks. Mauricia runs a thriving dog and cat grooming business in Pearisburg, Virginia. Bitten by an infected tick in 2009, Mauricia became the Erin Brockovich of Southwest Virginia, fighting to get her Lyme case reported by local and state health officials. Her persistent and passionate advocacy for Lyme and tick-borne diseases made Mauricia the first reported case of Lyme in Giles County, Virginia. Thanks to her precedent, many cases have been reported in the Southwest region of Virginia.

Call Mauricia for information on the time and date of future meetings. She can be reached at mjpetgrooming@yahoo.com, or (540) 921-2836.

View upcoming Chapter Meetings.

Washington, D.C. CHAPTERS

The National Capital Lyme and Tick-Borne Disease Association is concerned with the physical, emotional and social impact on people and their families diagnosed with Lyme and tick-borne diseases. A network of NatCapLyme chapters in the District of Columbia, Virginia and Maryland offers meetings, events and education. Support groups vary in their focus with emphasis on support, education and social gatherings. If you are seeking a support group check our listings to the left.

Johns Hopkins Sibley Memorial Hospital Chapter

Monthly support group meetings of the Washington, D.C. flagship chapter take place the first Sunday of the month, with the exception of January, July, and September.

Location: Johns Hopkins Sibley Memorial Hospital,
New Medical Building, Room 2
5215 Loughboro Road, N.W.
Washington, D.C. 20016-2634

Time: 2:00 p.m. to 4:00 p.m.

View upcoming Chapter Meetings.

The meeting facilitators are Monte Skall and Kathy Boileau.

Monte Skall is a co-founder and executive director of NatCapLyme. Drawing upon her years of teaching experience, Monte has devoted her time and efforts to educating the public about Lyme and other tick-borne diseases. She is an advocate for the advancement of research to help all people suffering from this disease. Monte can be reached at (703) 821-8833, or at natcaplyme@natcaplyme.org.

Kathy has been on the NatCapLyme board of directors since 2001 and has shared her expertise in Lyme disease treatment and diagnosis at many support group meetings. Kathy worked as a registered nurse at Inova Fairfax Hospital for more than 15 years before being diagnosed with Lyme disease in 1998. Always available to talk and help others, Kathy can be reached by phone at (703) 464-0677, or by email at KMBoileau@verizon.com.