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Home Legislative Activities Press Release: Major Summit on Tap for Lyme Organizations

Legislative Activities

Founded in and serving the Washington, DC area since 2001, NatCapLyme educates government officials and healthcare industry leaders about Lyme and tick-borne diseases on behalf of individuals and families of those afflicted with such diseases. We actively engage with all sides of the Lyme and tick-borne disease issue to encourage measurable progress. NatCapLyme is an all-volunteer organization, but we have an appointed legal and legislative counsel, as well as individual board members, who bring political and legal experience to the table. Our legislative activities are ongoing, always focused on improving the lives of tick-borne disease sufferers.

Legislative-activities

We’re fighting on many fronts. We invite you to see what we’re doing on a state and federal level:

Press Release: Major Summit on Tap for Lyme Organizations
LEADERS URGE UNITY – STRENGTH IN NUMBERS.

Washington, D.C., February 6, 2009. Leaders from top Lyme disease organizations across the country plan to assemble on March 28, 2009, at George Mason University near the nation’s capital to hold an open discussion of their views and build unity in the Lyme community.Lyme disease is one of the most misunderstood and controversial diseases in U.S. history, and cases are dramatically increasing many thousands each year. Lyme victims are seeking long overdue CHANGE–in testing and treatment that will improve their lives and research to cure this debilitating diseaseLyme leaders and advocates plan a one-day forum to discuss their views and consider the need for Congressional action to accomplish goals that will serve Lyme and tick-borne disease victims.

SESSIONS WILL INCLUDE:
  • Understanding the Legislative Process and the Need for Hearings
  • Recommending Lyme and Tick-Borne Disease Goals and Objectives to the U.S. Congress
  • Substantive Issues in Lyme Legislation and Congressional Solutions
  • Participation in the IDSA Guidelines Review Process and Public Hearin
  • Presenting a United Front

All Lyme organizations throughout the country are being invited. Groups and individuals are urged to share ideas and suggestions in advance and may find additional information at http://www.natcaplyme.local/LegForum.

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