August 12, 2023
Virginia Tick-borne Disease Working Group
Final Meeting
The final meeting of the Virginia Tick-borne Disease Working Group will be held Monday, August 14 at 11 AM. The purpose of the working group is to make recommendations to the Governor of Virginia for reducing the occurrence and impact of tick-borne diseases in the Commonwealth by November 1,
Dr. Sam Shor will address the physician’s role in the diagnosis and treatment of Lyme and tick-borne diseases.
To participate in this meeting, join with the direct link: Tick-borne Disease Work Group Aug 14 Zoom Meeting. To see the Agenda and Click Read More
Read moreJuly 10, 2023
The National Academies of Science, Engineering and Medicine held a successful and informative two-day workshop in Washinton DC titled “Toward a Common Research Agenda in Infection – Associated Chronic Illnesses: A Workshop to Examine Common, Overlapping Clinical and Biological Factors”.
The workshop brought together clinicians, researchers, health officials and patient advocates to examine common biological and clinical factors associated with four chronic illnesses: Long Covid, Post Treatment Lyme Disease or Persistent Lyme Disease, ME/CFS, and Multiple Sclerosis. The presenting experts agreed it is critical begin to recognize the commonality of these diseases, to find the identifying biomarkers of each disease and develop accurate diagnostics and curative therapies.
Read moreJuly 9, 2023
NatCapLyme is pleased to announce that HB 2008, legislation we helped pass in 2023 (see below) has resulted in the convening of the Virginia Tick-borne Disease Working Group. Several meetings have been held and the minutes of those meetings may be found on the Virginia Regulatory Town Hall website (https://townhall.virginia.gov/). The purpose of the working group is to make recommendations to the Governor for reducing the occurrence and impact of tick-borne diseases in the Commonwealth by November 1, 2023.
If you are interested in participating in the next meeting go to https://townhall.virginia.gov/ and select “meetings” in the menu options on the left side of homepage and then choose “Virginia Department of Health” from the agency drop down list that appears on the following page. Alternatively, try this direct link: Tick borne Disease Work Group Meetings.
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For almost 20 years, NatCapLyme has been a nationally known advocate for the recognition of tick-borne diseases and for the acknowledgment of the people who suffer from these diseases.
Read moreSince its inception, NatCapLyme has provided support group meetings to Lyme sufferers and their families.
Read moreNatCapLyme authored and petitioned for the passage of the Lyme Disease Testing Information Disclosure Act of 2013, and in 2016, the State of Maryland passed the Lyme Disease-Laboratory Test-Required Notice bill.
Read moreNatCapLyme participated in the creation of a newly formed organization called Partners Against Lyme and Tick Associated Diseases (PALtad). This organization was founded to advocate for and protect the rights of patients suffering from tick-borne diseases.
Read moreNatCapLyme created a new series of highly acclaimed educational print materials on Lyme and tick-borne diseases including our trademarked Tick Busters Series for children.
Read moreNatCapLyme participated as a panel member on numerous Virginia and Maryland Task Forces, which focused on Lyme and tick-borne diseases.
Read moreNatCapLyme was a participant in the Institute of Medicine’s scientific workshop and represented the patient community on a summation panel presenting the patient’s perspective on current gaps in the science and research of tick-borne diseases.
Read moreIn anticipation of the IDSA’s Lyme treatment guideline review hearing at the Ronald Reagan Building in Washington D.C., NatCapLyme created an awareness campaign using lime green ribbons placed on two of the main thoroughfares entering Washington D.C.
Read moreNatCapLyme held a Congressional luncheon briefing for members of Congress and staff on Lyme and tick-borne diseases. All 535 House and Senate members were invited.
Read moreNatCapLyme engages in a variety of fundraising efforts to accomplish its mission and work on behalf of individuals with tick-borne illnesses.
Read moreTick Busters: Wanted Dead or Alive, NatCapLyme’s newest children’s educational series was chosen as a winner in the Department of Health and Human Services 2021 LymeX Education and Awareness Healthathon Challenge on August 12, 2021.
Read morePlease fill out the form below for general inquiries.
National Capital Lyme Disease Association
P.O. Box 8211
McLean, VA 22106-8211