January 29, 2020
Washington, DC
Gregg P. Skall, Esq, who serves as legal counsel to the National Capital Lyme Disease Association, provided public comments at the 11th meeting of the Tick-Borne Disease Working Group (TBDWG) on Tuesday, January 28, 2020 in Washington, DC. Mr. Skall’s presentation focused the December 2019 signing of the Kay Hagan Tick Act. Mr. Skall asked the TBWDG, “Should this funding be appropriated, the important question here is “Who will get the money? Especially, since the legislative funding language was changed from “tick-borne” to “vector-borne” disease during the legislative process.” Mr. Skall further asked, “How much will be siphoned away from tick-borne disease to less common but more publicized vector diseases associated with mosquitoes?” Mr. Skall also stated that NatCapLyme believes that future research funding should include patients with the PERSISTENT form of the disease given that these patients are at the heart of the Lyme controversy!
Read moreJanuary 21, 2020
Washington, DC
Hello, I am Dr. Joseph Jemsek. I am an Infectious Disease physician working in Washington, DC and founder of the Jemsek Specialty Clinic. I am reaching out to you today because I wish to share good news.
In 2006, the NC medical board restricted my medical license due to my longer-term therapy of Lyme Borreliosis Complex in this very sick, politicized and marginalized population. Now, well over 13 years later, these NC medical board orders have been rescinded and abolished. This rarely happens.
Some of you may know about my career in HIV/AIDS where I started in the very early days and devoted over two decades to this epidemic. Some of you may also be aware that I’ve devoted my attention to Lyme Disease or ‘Lyme Borreliosis Complex’ for almost two decades as well.
Read moreNovember 9, 2019
Herndon, Virginia
In our continuing efforts to teach children, parents, educators and school nurses about the dangers of tick bites and tick-borne diseases, NatCapLyme debuted its new Tick Busters series of educational literature on Lyme and tick-borne disease prevention. The series consists of a storybook, a membership/tick ID card, a brochure, a coloring/activity book and a rack card. Since NatCapLyme feels that education is your best defense to prevent Lyme and tick-borne diseases, the series heavily focuses on teaching children how to prevent being bit by a tick.
NatCapLyme makes this literature available free of charge to families, teachers, school nurses, your child’s classroom, or any other educational institution interested in spreading the word about tick bite prevention. To request material, please contact us at 703-821-8833 or natcaplyme@natcaplyme.org.
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Dr. Richard Horowitz, one of the country’s prominent Lyme and tick-borne disease specialists, recently made a presentation to the National Capital Lyme Disease Association. The title of his presentation was: Precision Medicine for Chronic Lyme and Multiple Systemic Infectious Disease Syndrome (MSIDS).
- Richard Horowitz, M.D. at Hudson Valley Healing Arts Center
We hope you enjoyed watching the recently released Tick Check 1-2 rap video created by Andy Lima, also known as MC Bugg-Z, a biologist with the Fairfax County Virginia Health Department. Our very own Veronica Hohenstein interviews Andy as he chronicles the making of this video as well as explains the tremendous need for a video to reach young viewers on tick-borne disease prevention. Please click the camera icon to watch this informational, as well as fun, interview in which Andy closes with a spontaneous rap.
- Andy Lima (a.k.a. MC Bugg-Z), Tick and Mosquito Biologist at Fairfax County Health Department
On December 11, 2017, Gregg P. Skall was asked to present the keynote address to HHS’s inaugural TBD Working Group in Washington, DC. Mr. Skall has been the pro bono counsel for the National Capital Lyme and Tick-Borne Disease Association. For these past 20 years, Mr. Skall has passionately advocated for the acknowledgement of Lyme and tick-borne diseases and for the advancement of treatment.
- Gregg P. Skall, General Counsel at NatCapLyme
Dr. Samuel M. Shor, M.D. recently made a presentation to the National Capital Lyme Disease Association providing an update on the clinical research he is conducting with Ceres Nanosciences, a Northern Virginian based biotechnology company.
- Samuel M. Shor, M.D. at Internal Medicine of Northern Virginia
Dr. Neil Spector, M.D. recently presented to the National Capital Lyme and Tick-Borne Disease Association. The title of his talk was: Analogies between Lyme Borreliosis and Cancer Biology: Therapeutic Implications. His work focuses on the molecular and immunobiology of cancer, which could also lead to a paradigm shift in treatment to a new generation of targeted and immunotherapies to battle Lyme and its co-infections.
- Neil Spector, M.D., Sandra Coates Associate Professor of Medicine; Associate Professor of Pharmacology and Cancer Biology at Duke University School of Medicine
Dr. Ying Zhang, M.D. recently presented to the membership of the National Capital Lyme Disease Association and the public-at-large at Johns Hopkins Sibley Memorial Hospital in Washington, DC. His informative presentation titled, “Drugs Targeting Borrelia Persisters: Implications for Improved Treatment of Persistent Lyme Disease,” was well received by the audience.
- Ying Zhang, MD, PhD, Professor, Department of Molecular Microbiology and Immunology at Johns Hopkins Bloomberg School of Public Health
Welcome to NatCapLyme’s new website, which was designed to bring updated information and new insights about Lyme and tick-borne diseases to our membership and the public at-large.
- Monte Skall, Executive Director at National Capital Lyme Disease Association
For almost 20 years, NatCapLyme has been a nationally known advocate for the recognition of tick-borne diseases and for the acknowledgment of the people who suffer from these diseases.
Read moreSince its inception, NatCapLyme has provided support group meetings to Lyme sufferers and their families.
Read moreNatCapLyme authored and petitioned for the passage of the Lyme Disease Testing Information Disclosure Act of 2013, and in 2016, the State of Maryland passed the Lyme Disease-Laboratory Test-Required Notice bill.
Read moreNatCapLyme participated in the creation of a newly formed organization called Partners Against Lyme and Tick Associated Diseases (PALtad). This organization was founded to advocate for and protect the rights of patients suffering from tick-borne diseases.
Read moreAs one element of our public awareness campaign, NatCapLyme created a new series of highly acclaimed educational print materials on Lyme and tick-borne diseases.
Read moreNatCapLyme participated as a panel member on numerous Virginia and Maryland Task Forces, which focused on Lyme and tick-borne diseases.
Read moreNatCapLyme was a participant in the Institute of Medicine’s scientific workshop and represented the patient community on a summation panel presenting the patient’s perspective on current gaps in the science and research of tick-borne diseases.
Read moreIn anticipation of the IDSA’s Lyme treatment guideline review hearing at the Ronald Reagan Building in Washington D.C., NatCapLyme created an awareness campaign using lime green ribbons placed on two of the main thoroughfares entering Washington D.C.
Read moreNatCapLyme held a Congressional luncheon briefing for members of Congress and staff on Lyme and tick-borne diseases. All 535 House and Senate members were invited.
Read moreNatCapLyme engages in a variety of fundraising efforts to accomplish its mission and work on behalf of individuals with tick-borne illnesses.
Read moreNational Capital Lyme Disease Association
P.O. Box 8211
McLean, VA 22106-8211
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